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Back from the brink

Left to right — Richelle Virgil with her twin daughters N’Keema (centre) and N’Tajee. (Photo by Akil Simmons)

“My life did not change in a day; my life changed in seconds,” says Richelle Virgil, of the moment a doctor told her that her 12-year-old daughter N’Keema had a tumour on her brain. “Oh my God, it was terrible. There was no warning.”

It was New Year’s Eve 2012 and Ms Virgil had taken the youngster to the emergency room at King Edward VII Memorial Hospital a few days before, suffering, she thought, from dehydration caused by a bad bout of flu.

But as they arrived at the door of ER, N’Keema collapsed. She was kept in overnight, complaining of headaches, stomach pain and problems with her balance, and her paediatrician Stephen West ordered a battery of tests the following day, including an ultrasound, a CT scan and an MRI.

The first two tests showed little but the MRI, carried out on December 31, was a different matter and Dr West took Ms Virgil into a private room, two doors down from where her daughter was resting, to break the news.

“He said ‘we found the source of N’Keema’s problems’. I instantly froze because he said he found something. He said ‘I found a mass on the back of her brain, on the right side of her brain’. I said ‘OK’. I told Dr West to shut up. I said ‘I can’t hear this by myself’.”

Ms Virgil got one of her older daughters to join her in the room and they listened together as Dr West explained that N’Keema would have to fly off the Island with her mother that evening for further tests.

“I couldn’t even go home to get my clothes,” says Ms Virgil. “By the time Dr West came to tell me what was going on, that air ambulance was already on the way.

“When a doctor has to deliver news to you, when you see the doctor with tears in his eyes, as much as he tried to conceal it — he was no longer a doctor, in my eyes, he was a parent, a concerned parent.”

Things moved breathtakingly fast after that conversation — and Ms Virgil thanks God that they did, for once N’Keema was assessed at the Children’s Hospital of Philadelphia (CHOP) it became clear that she had two rapidly growing, malignant brain tumours — known as medulloblastoma — and needed urgent, life-saving treatment.

A year and three months later, the Dellwood Middle School student is all smiles as she poses for photographs for The Royal Gazette with her mom and twin sister N’Tajee — and it’s no wonder.

She was declared cancer-free on her last visit to Philadelphia and her family are hoping and praying she stays that way.

“I feel awesome,” says N’Keema, flashing the trademark grin that her mother says won her so many friends at CHOP.

The teen, now aged 13, had three operations and extensive radiation and chemotherapy at the hospital.

She lost all her hair and her weight dropped from 70lbs to about 52lbs — but that smile never faltered, according to her mother, and she amazed medics with her strength, resilience and courage.

Asked how she got through her ordeal, N’Keema thinks for a moment and then gestures to her mother: “You pushed me and my mind pushed me too. I wasn’t happy to be in hospital [but] I was happy to see my doctors and nurses.”

N’Keema remembers little of that fateful New Year’s Eve in 2012 — other than that she saw in 2013 in two different countries — but it’s indelibly etched into the memories of her mother, siblings and other close relatives.

Ms Virgil recalls how everyone gathered at KEMH before the air ambulance flight to say their farewells, desperately trying to hold back their tears in front of N’Keema.

“I think everybody came to the hospital knowing that she had the tumour,” says Ms Virgil. “They were so emotional. I had to turn and walk away. They made her laugh. We took pictures. It was her twin that broke down.”

She describes how N’Tajee told her she was terrified her sister would never return to Bermuda. “She was so scared that her sister was going to die,” says Ms Virgil.

“We finally got her to calm down a bit. She was finally able to go back in the room. She lay in bed with her sister — we gave them their space.”

Eventually, it was time for N’Keema to board the air ambulance, telling her mom: “I just want to see snow.”

Ms Virgil, who was terrified of flying and hadn’t been on a plane for years, looked into the air ambulance and declared: “I can’t do it.”

But her cousin, who had joined her on the concourse, told her she had to.

“I took one look at my child and said ‘I have to do this for her’,” says Ms Virgil, adding that her daughter drifted to sleep as the plane took off. “I laid my head on top of her and I closed my eyes and it was the most peaceful time of my life.”

There was no snow to greet them in Philadelphia but the staff at CHOP could not have given them a warmer welcome.

“They were amazing,” says Ms Virgil. “As much as I cried, they gave me strength. They made you feel as if you were in the hands of somebody who was going to do everything in their power to make sure this turns out in a positive way.

“They didn’t make me feel like I was just a parent, at that point. I was one of them.”

The tests at CHOP revealed that N’Keema had a second tumour on top of her brain and that both were malignant and needed to be removed.

“There’s no cause,” says Ms Virgil. “I beat myself up tremendously but it wasn’t anything that I could have done during pregnancy or after.

“It wasn’t hereditary. They couldn’t tell me why and they couldn’t tell me how long it had been there.”

The mother-of-eight recalls how in the weeks before N’Keema was admitted to KEMH in December 2012, she had developed a slight nervous twitch, become clumsy on her left side and stopped making eye contact.

Her mother had made an appointment with Dr West but then the youngster got ill with what seemed to be flu and the appointment was postponed. The brain tumour diagnosis at CHOP tied in with the symptoms.

The treatment at CHOP included an initial operation to remove most of the tumour at the back of N’Keema’s brain, followed by radiation to destroy what was left and the second tumour.

A later emergency operation was needed when fluid began to build up and N’Keema now has a permanent shunt in her brain.

The physical impact on the youngster was devastating — and she is still recovering.

“Her mobility was limited to that of a baby,” says her mother. “Nothing prepared me for seeing my child like a newborn.”

N’Keema’s first stay at the hospital lasted until March 23 and she and her mother forged several lifelong friendships during that time.

Ms Virgil gradually explained to her daughter the severity of her condition, describing the tumour at first as a “bump” and eventually telling her she had cancer.

“She said ‘OK’. Everything she took so nonchalant and so easy. I said ‘some people won’t be here tomorrow from having cancer and some people will be cured. I don’t know what’s going to happen’. I never, ever — as hard as it was for me as a mother — gave her false hope.

“I wanted her to have hope that she can live but I never hid from her the possibility that she can leave here. I was truthful with her the whole way around.

“Two days after the first surgery, she said to me ‘Mummy, if I go up there, is God going to make me an angel?’ I said ‘yes, he will. He’s going to make you an angel but you are already one and God needs angels on Earth’.”

Ms Virgil sees her daughter’s journey back to health as evidence that miracles really do happen.

So far, N’Keema has not needed a blood transfusion and seems to be getting better every day.

Throughout 2013, between trips to Philadelphia, she returned to school and diligently completed her homework from her hospital bed. She hopes to one day become a doctor or nurse herself.

“She is so humble in her spirit that she doesn’t complain much,” says her proud mother, adding that both twins are now undergoing counselling, for N’Tajee has also had to come to terms with her twin’s disease. N’Keema will be tested regularly by doctors for the next five years to ensure she stays cancer-free.

Ms Virgil stresses how grateful she is to her sister Fawn Melody Arthur for recommending CHOP and being by her side at the hospital.

She is also grateful for the support she’s received from other family and friends, from cancer charity PALS, from her church Midland Heights Seventh-day Adventist and from the community.

And she says she must thank God for everything.

“I have to be thankful for every day, every minute, every second that my child is here. Not just that child, but all my children.”

Photo by Akil SimmonsBermuda Nationals Girls Under-14 basketball team raised $500 at the weekend to help pay for medication for 13-year-old N'Keema Virgil, who has successfully battled brain cancer. Shown with N'Keema (centre, holding cheque) are captains Emily Hellam and Ember Butterfield. Also shown are Yasmin DeGraff, Amber Furtado, Inshan-nae Smith Sakari Famous, Zariah Amory), Caroline Amaral and Indya Lewis. Team members Demiqua Daniels, Nya Heyliger, Jade Stewart and SiYuanne Hall are not shown.
Photo by Akil SimmonsThe Bermuda Nationals Girls Under-14 basketball team raised $500 at the weekend for Bermuda Autism Support and Education. Shown in the front row are co-captain Emily Hellam, autism patients Jonathan Smith and Tristen Purvey and co-captain Ember Butterfield. Also shown are the rest of the team Caroline Amaral, Yasmin DeGraff and Amber Furtado, Zariah Amory and Indya Lewis and Inshan-nae Smith and Sakari Famous. Team members Demiqua Daniels, Nya Heyliger, Jade Stewart and SiYuanne Hall are not shown.
Thirteen-year-old Dellwood Middle School pupil N'Keema is shown after a tumour was removed from her skull by doctors at Children's Hospital of Philadelphia.
Thirteen-year-old Dellwood School pupil N'Keema prepares to walk after a tumour was removed from her skull by doctors at Children's Hospital of Philadelphia over a year ago.
A feeding tube is inserted into N’Keema’s nose — a daily occurrence for the youngster in the Children’s Hospital of Philadelphia.
Thirteen-year-old Dellwood pupil N'Keema is shown being fitted with a radiation mask at Children's Hospital of Philadelphia.
N'Keema, assisted by a therapist at the Children's Hospital of Philadelphia, practises walking after her surgery.
<p>Girls basketball team raises $1,000 for N’keema and autism charity</p>

Bermuda’s national under-14s girls’ basketball team raised money for two worthy causes at the weekend — after reaching its own fundraising goal for a trip overseas.

The teenagers raised $2,000 at a car wash at Bermuda Athletic Association on Saturday and decided to give $500 to young brain cancer survivor N’Keema Virgil and $500 to Bermuda Autism Support and Education (BASE).

Team manager Erna DeGraff explained that the players have been working hard for months to raise funds for a basketball tour to Montreal, by holding car washes, bake sales and tag days.

“Once we had reached our target, we wanted to give back to the community, as they had given to us,” she said. “We therefore planned a car wash and dedicated it as our ‘Give Back’ initiative. Our aim was to give back to other kids. BASE’s aim is to support autism in the classroom and they are currently providing materials for the classroom at West Pembroke Primary School.

“Their next plan is to provide bicycles for the children and our donation will be directed to that cause.”

Mrs DeGraff said she heard about Dellwood Middle School student N’Keema through her church and felt she would be an excellent beneficiary, having successfully battled two brain tumours. “N’Keema is 13 years old, the same age as some of our girls, and is currently dealing with a matter that not many people will experience.”

The teen is now cancer-free, having undergone surgery, radiation and chemotherapy, but still needs to take medication.

Her mother Richelle Virgil said the $500 would go towards co-payments for those drugs, adding that she was “overwhelmed” by the gesture.

“I’m not just grateful for the money,” she added. “It goes beyond that. It’s the compassion. You just don’t know how grateful I am when people reach out.”

The team is being sent to Montreal on April 8 by the Bermuda Basketball Youth Federation, which comes under the umbrella of the Bermuda Basketball Association.

The girls will play exhibition games against two high school teams and take part in a four-team round-robin weekend tournament against three club teams.

“The emphasis of this trip is to further expose the team to the level of play expected of them as girls’ basketball in Bermuda goes forward,” said Mrs DeGraff.

Sponsors for the trip are E&B Trading, DH Augustus & Sons funeral home, Redlaser and RM Maintenance.